I’m Not a Flake, I Have Chronic Pain

Some might call me a flake. Yes, I’m that girl. I reschedule. I cancel last minute. I’m fucking unreliable, and I it makes me feel useless, inadequate like I’m letting the whole world down! (Yes, I’m that dramatic)

I’d be cocking up this blog job royally if I were actually being paid for it. I try to publish at least weekly but sometimes it’s more like a bi-monthly thing.

I’ve never managed to stick to the golden blogging rule of releasing on one particular day of the week. I’m woefully inconsistent at best.

This weekend I agreed to go to an event a friend invited me to at the last minute as she had an extra ticket. Her father had kindly, offered to drive me.

At first, I said yes, desperate to be part of such a thing, but I began adding up the amount of time I’d be out for and at 4 hrs minimum I could see by the by the time I reached home I’d be pain’s bitch for the foreseeable future.

I tossed and turned all night trying to decide and I woke up in so much pain I ended up in tears and calling to cancel. So predictable, so boring.

My unreliability makes me crazy. I always showed up and I always met deadlines before this disability garbage. I may not be a journalist anymore but that is where a great deal of my educational training lies. Writers must meet deadlines. That is the game. I would fire me.

Before all this crap started 10 years ago I remember thinking nothing would ever stop me. I recall resenting my Mom’s chronic knee pain. Why couldn’t the Dr just fix it? Why couldn’t she stop being so dramatic? How could her pain possibly be perpetual?

My Mom wasn’t always easy to be around when she was in pain. Her temper could be tempestuous, calm one moment and a storm of anger the next. Her constant random grunts and winces annoyed me. As a teen, I resentfully stomped down the stairs to the freezer in order to save her knee the grief when she asked.

I was a fucking monster. Maybe not, but I sure as hell know chronic pain now and it’s a motherfucker.

Chronic pain is so hard to understand, there are so many facets, so many inconsistent variables, and when you’re a kid like I was, it’s hard to understand when a parent, friend, or other loved one suddenly can’t do the things you once loved doing together.

Just as my Mom wanted her mobility back, wanted to be as she’d been, not deal with pain on a daily basis, I wanted her to be that way again and instead of resenting the disease I resented her sometimes. It’s just mind over matter right?

FUCK THAT NOISE!

If only I knew then what I know now. Chronic pain doesn’t fall into the mind over matter category, it falls into the, I can only do what I can do category.

For instance, as I mentioned, Saturday I had to cancel at the last minute on a friend because I was in so much pain. On Sunday I had a pretty good day and felt I accomplished a lot. On Monday I had a better day and got even more done. Today, I am sore but still kickin’.

My point is, even on a good day the pain is there roaring like a beast in the background and on a bad day, and sadly there are more bad days than good right now, the beast devours me and leaves my putrid and pathetic bod in bed for days.

Fortunately, before my Mom died I apologized to her profusely for not understanding her pain, for not helping her more with it. She was gracious of course and she also helped me all she could when I fell victim to chronic pain.

For everyone out there who knows one of us chronic pain copers please be better than I was as a teen;

  • Try to understand the nature of chronic pain as a constant that only gets softer or louder but never shuts off, and empathize, but please don’t advise.
  • Be understanding about cancellations. Believe me, none of us wants to cancel on a loved one.
  • Be attentive to your friend’s energy levels. Sometimes I get excited to be out and stay out too long then end up in utter agony for days. I police myself but it’s nice if a loved one knows energy with chronic pain is far from boundless and reminds me to take a break now and then.
  • Remember we’re the same people we were before the pain we just have a little added baggage now. This doesn’t mean we love you any less or don’t want to spend time with you. Chronic pain leads to all sorts of scheduling and emotional conundrums, please just be patient, believe me, patience and love mean the world.

I’d love to hear what helps you with loved ones when explaining chronic pain or how you interact with those with chronic pain. Please leave your comments below and take good care until next time.

K

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2 thoughts on “I’m Not a Flake, I Have Chronic Pain”

  1. My sister has chronic pain. Trying to get disability but so far denied. She turned 59 today. She is tired and is suicidal. Won’t return texts and don’t even know if she still alive or what. Won’t answer the door if I did go by. Don’t know what to do

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    1. I’m so sorry to hear about your sister. Chronic pain is even harder when one can’t get any help or small relief. Also, this must be very difficult for you. It’s clear you care about her very much. I think the best thing to do would be to phone the police and have them go to her home to do a safety check to make sure she’s ok. If she’s mentioned suicidal it’s important you call as soon as possible. I’m so sorry I took so long to reply. I didn’t notice the email notification of your post. I do hope this is helpful. Please know you or your sister are welcome to email me at kim@trefor.ca anytime if you want to talk or vent, whatever you need. Hugs, Kim

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