5 Things I do Differently Because of Chronic Pain

When chronic pain took over my life 12 years ago my life changed forever. I had no ideas things would change physically, mentally, emotionally, and practically. I took so much for granted when I was well, *insert hindsight cliched platitude here*

Over time I began doing things in my life differently. I didn’t do anything that would be, perhaps, sensible for an able-bodied person. I’d like to share 5 particular changes I’ve had to make and why;

  1. I pick my battles, if I’m going to see a Dr or visit a friend I keep my cleaning tasks for light that day. Leaving the house is just as important as sweeping the entrance ways and kitchen and it’s ok if I only dust a couple window sills and do the dishes on a day that includes an outing.
  2. I strategize about everything before I do it to make sure I’m tackling every task as efficiently as possible. For instance, If I’m going to watch tv in the basement, I will gather all my drawing things, a snack, meds, my phone and whatever else I think I might need, into a basket and I carry that downstairs rather than making multiple trips and this is important to me as the stairs are often tricky as my ankle frequently is so painful that limiting trips is best.

2. I break up cleaning tasks. For example, if I have groceries coming one day I try to clean up the fridge the night before. I needn’t add that extra task on grocery day as, even with delivery, it’s still a lot of work carrying everything into the kitchen and putting it away. If I could rely on my cat to help with these tasks perhaps I wouldn’t find it so tiring but he never agrees to help. He’s kind of a jerk when it comes to assisting with household tasks. At best he only agrees to supervise when I clean his litter box.

3. I try to set certain and reasonable standard cleaning tasks for each day. EOne standard task is making sure the majority of the dishes are done or loaded into the dishwasher.

4. If I’ve put a load of laundry in I make sure to fold it as I take it out of the dryer. This ensures that the majority of items won’t need the extra step of ironing. If there are clothes that need to be hung up I place them on top and hang them up right away. If I run out of juice to do anymore I know everything is folded neatly until I find the energy to put them away.

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2019 is Starting & I’m Not Sure About it

I haven’t written in a long time. My personal life is going through some dramatic changes. I’m not comfortable talking about these changes in detail as there are others affected by this situation and I don’t want to risk hurting feelings or having something I write misconstrued and misunderstood.

Let’s just say I feel my life is changing rapidly and I’m struggling each day to keep up with the evolution. I’m finding strength I never knew I had. I’m going to keep going.

2019 is going to be a hell of a ride but it’s my ride and I can help shape it with grace, empathy and loving kindness along with assertiveness, an awareness I’m not always at fault and a refusal to give up.

I guess if I had to make a resolution it would be this;

2019 will be the year I face life fearlessly, and love and care for myself as though I’m my own child.

I wish the same for all of you.

Happy New Year

K

Inspiration is Everywhere

Every artist finds themselves feeling uninspired once in a while. For example, I’ve been drawing tree women for months and, while I love my girls, I want to shift my focus and work on something else. Here are 5 ways I’ve been looking for new inspiration and a refreshed point of view.

Here’s a brand new drawing I created from a combination of colours I’m drawn to right now, some twisted trees that came to mind, and a figure pose I found on Pinterest, I then altered her hair, clothing, and overall aesthetic. Yeah, creativity!

  1. Go for a walk or look out a window and study what you see. It may look like just more trees, or other houses, or a parking lot but if you look closer there’s so much more going on. People are coming and going, lights twinkle at night if you’re in a city, stars twinkle if you live somewhere rural. There’s so much to see and ponder. It might not happen all at once but if you listen closely there’s inspiration everywhere you look.
  2. Relax. Relax. Relax. Putting pressure on yourself to produce new art is unlikely to make things happen, although my next point will directly contradict this point, it just depends on what kind of person you are. Both techniques often lead to new and exciting, quality work.
  3. Set a reasonable deadline and stick to it. For many people having a deadline to keep them working towards something. Personally, I am motivated to write by deadlines to some degree but when it comes to drawing I put less pressure on myself. As long as I practice every day I know I’ll get to something fresh and exciting in the near future.
  4. Look for inspiration in your immediate surroundings. It may sound strange but check out the shadows that cross the different rooms in your house throughout the day. Look at the shapes and design of your furniture and decor. Then ask yourself how you can incorporate some of these shapes into your work.
  5. Pinterest is a great source for inspiration. Never directly copy anything, unless it’s just for practice and not to be shown as your original work. I have files for figure inspiration, faces to draw, shapes, illustration style, trees, water, and more. Any time I’m looking for something to practice or if I want to draw a Trump cartoon, I head to Pinterest and pull out the picture I want to use. When I’m feeling uninspired I scroll through and add all sorts of new ideas to my files and soon enough I’ve found several ideas to combine and add my own twist to in order to create something exciting and new.

I hope these few ideas for finding inspiration are helpful. Using your creativity is a great way to cope with pain and mental illness, I know this first hand, unfortunately. Creativity is by no means going to solve all your problems but I find it to be an integral part of my path to coping with chronic pain and mental illness to the best of my ability.

Please let me know if you have any special techniques you use to stir up your creative juices. As always, I love to hear from you.

K

Gaming Addiction – Freakin Mental Monday

Watch as Another Freakin Athiest and I co-host our weekly show regarding mental illness. We discuss Gaming Addiction and it’s placement in the new DSM and with the WHO. We also spend time discussing what defines addiction with regards to gaming.

If you’re looking for more info regarding possible gaming addiction and recovery ideas check out http://www.gamequitters.com

I’m Not Doing Enough… Really?

I often beat myself up for not doing enough. Sometimes it feels as though the world is passing me by like I fell off the treadmill and can’t seem to regain my footing.

What if there’s another way? What if the treadmill isn’t the only way to get around in life? Is it a little scary to forge my own path? YES. But I don’t have to let fear stand in my way. I can be brave.

What if I choose to see it that the world isn’t working faster or harder than me but that we all do things at our own pace and that’s ok.

Occasionally I wonder, if I were a stronger person would I be able to cope with the pain and thrive? I’ve heard stories of others who prevail and cope with mental illness and chronic pain, like superheroes sent to taunt me with their power to overcome the very things that hold me back. Is this really the case though? or am I simply not as appreciative of my own work over that of others.

Why shouldn’t I value my own accomplishments and efforts in the same way I value the work of others? What would happen if I chose to value myself for just being me?

Lately, I’ve been focusing on challenging my negative thoughts. Therapy has taught me to check out the assumptions I make to see if my logic holds or if I might reconsider.

If I check the assumption that, “I’m not doing enough.” The first thing I notice is the ambiguity of the word, “enough”. How much is enough?! Who the fuck knows. What I take away from this analysis is that I’m mustn’t base my goals on nebulous ideals.

If I look at the word, “doing,” next and check my assumptions out something interesting occurs to me; drawing, writing, yoga, housework, visiting Drs, planning creative works, pacing myself so I can manage to have the energy for visits with friends and family, playing with my cat… I am doing quite a bit when I look at all these items.

Now if I go back to my original statement, “I’m not doing enough,” I can see this statement for what it is. It’s a thinly veiled put-down that assumes my value is based on physical output and monetary accumulation alone.

The statement is also judgy and unfair. I’m essentially telling myself I’m not good enough and because I’m not good enough, I’m worthless. That’s a pretty shitty thing to tell myself right?

Imagine if I called up a close friend with chronic pain and mental illness and said, “dude, I’ve got to be honest with you, I don’t think you’re doing enough.”

I cannot even imagine saying such a thing to an enemy let alone a close friend. If I wouldn’t say such a thing to a close friend why the hell would I say it to myself? I have to allow myself the same empathy, love, kindness and caring I’d show anyone else, otherwise, I might as well punch myself in the face every morning.

Sadly, I’d have to punch myself in the face a number of times throughout the day as that’s how often I’m making negative comments to myself, about myself. I want to be done with treating myself this way. I need to be my own best friend and train my brain not to hurl insults at itself. I need to teach my brain that I am enough, that I have worth and I’m worth valuing.

I know it’s going to take time to, literally, change my brain but I’ve already noticed my inner voice growing stronger and more loving. I’m the only engineer I’m allowing to rewire the circuits of my mind, fuck your iron rings, I’m best suited to this job.

I can change my thinking if I continue to build confidence in myself slowly but surely, celebrating each small victory rather than waiting for someone else to change things for me all at once. If I take charge of the change I want to see I’m pretty sure I’m more likely to end up happiest with that which I’ve changed.

Are you playing an active role in building the future you want for yourself? What small changes can you make right now? What’s your ultimate goal for your future and will the changes you make move you closer to it?

K

Freakin Mental Monday

Hey Everybody,
I’m trying something new to spread info & awareness about mental illness.
I’m co-hosting a show called Freakin Mental Monday on the Another Freakin’ Athiest Youtube channel.
Tonight we’re talking depression symptoms & revealing our own struggles with depression.
Join us live at 6pm MDT & you can ask questions & comment in real time or watch it later when you’ve got time

Chronic Pain Fog

For the past month or so I’ve been wanting to write multiple blog entries. Ideas swirl round my mind, but like wily minnows, they slip through my fingers as I try to grab hold. I’ve only managed to spit out one or two blogs since my birthday at the beginning of August.

I write down drips and drabs and scribble notes on tiny scraps of paper or in one of a million notebooks and diaries. When I can think clearly it all comes together and my fingers fly across the keyboard and I can see the pattern building, the web I’m going to weave.

I suppose I haven’t really been slacking off too much. My focus has just temporarily changed to something a little less fun. I might have known, as I’m new to web design, “easy to use,” would mean, absolutely not easy to use if you’re a Luddite and the last time you learned web design was in 1998. I’m afraid those skills are just a titch out of date.

Luddite or not, I’m proud to say I’ve been working on a new website for my blog, as you may have noticed. http://www.perkreations.com will eventually also hold tons of easy to access mental health material. In addition, I plan to use the platform to showcase some of my art and offer cards, prints and originals for sale.

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This is the new logo I created for PerKreations. I’d love to hear what you think.

I use art, especially, as a coping mechanism when I’m in pain. I believe in pushing through the ugliness of art, that’s how you get to the good stuff. I usually manage to do this with drawing as I do it in a reclined position, on a heating pad.

Having said that, if I’m standing at an easel trying to paint it’s hard to push through anything when pain makes me feel I’ve a mind full of marshmallows, shakey hands, and a yucky sweaty face… these pain symptoms aren’t to be pushed through as the consequences will be incredibly painful and I don’t want to create a full-blown flare-up. In cases like this, I must put down my brush and come back to the easel after some rest.

The trouble with pushing through chronic pain is for many sufferers there is no end, just worse. The symptoms I mentioned, shakey hands, marshmallow mind and a sweaty face are just a few of the indicators I get that I’ve reached the end of my tether. Others may get rashes from the pain, experience swelling, feel cranky, irritable, anxious, depressed, guilty and more. Everyone with chronic pain is different and we all have our ways of coping and signs of overdoing it.

If I go out one day and run an errand, write or work on my site a bit,  go about the chores needing to be done to keep the house somewhat clean, then, even though I’m feeling sore and exhausted, I go out for dinner or meet a friend for coffee, I will pay for “pushing through the pain” with even worse pain that renders me useless for several days after.

I suffer from disc problems in my low back, hip issues, nerve pain and arthritis in my left leg, I also get sciatica pain. All of these pains sing to me in different tones or sometimes as a hellish choir. Some pains whisper one moment, then yoddle a moment later. As in, “Oh Fuck, my sciatica is yoddling!”

Sometimes it feels not too bad and is well managed with medication, knowing my limits and stretching. Sometimes the pain increases for no reason at all, sometimes it’s related to stress, and sometimes I overdo it. The trouble is the, “overdo it,” line isn’t always in the same place so it’s confusing as hell to figure out what’s too much and what’s too little. My body continually moves the goalposts on me.

I do not have pain-free days, I do not have pain-free hours. This is just how it is and over the past 12 years I’ve become better at handling the pain as well as anxiety and depression.

One particular thing that holds me back is pain fog. It limits my capacity to concentrate, stay calm, remember things, it’s as though all the different pains are singing a horrible, no good, very bad song in my head and if I have to think or focus on something complex like writing or decision making, I’m useless.

So, my website is coming along, although slower than planned. I am writing, although slower than I’d like. When the pain is bad I turn to my heating pad and create art to eventually have available on my website.

Do you experience pain fog? What’s it like for you? If you don’t have chronic pain had you heard of pain fog or brain fog? If you have any questions I’d love to hear from you dear readers.

K