I felt sick yesterday. Couldn’t eat, just wanted to sleep. I thought it was the flu but I’m not so sure. In the evening I thought more and more about why I might be feeling ill and then it clicked.
I’m freaking out!
This time last year and the year before I’ve been holed up in the psych ward, suicidal but safe. This year I’ve been doing ok but no matter how positive I am I can’t help but recall flashbacks and fear going back there again.
I’m also slowly trying to get my house tidied up as my Awesome, super-lovable Mum-in-law is coming to stay for a bit. I’m really excited and I know she just wants to see us but I still want to make things special for her of course.
I’m trying to do some meal planning and feeling guilty I don’t do any of the baking I used to do before I fucked up my back. I want to make French-Canadian Toutiere (meat pie) as I have for many years like my Mom and my Grandmother but I’m cheating this year and not making pastry from scratch like I used to.
There are a lot of things I simply haven’t got the energy or mental wherewithal to do anymore and saying this at 38 because of mental illness and chronic pain is crushing no matter if I should be used to it by now or not😢 Lowering my expectations was never a goal I thought I’d make. Lol!
My social anxiety seems to have kicked into high gear lately which is super great because this is the time of year for visiting. Yeeeeeah!
Anyway, ignoring all these feelings and worries and then over thinking them sent me into a full panic attack last night. Luckily my husband was able to talk me down a bit and make me laugh. The anti-anxiety meds helped too😉
But good things are happening also, I visited a close friend and her adorable baby and we decorated cookies, and chatted, and played with the babe. It was really a nice way to spend an afternoon. I even tolerated the first Christmas music of the season.
Happy Greetings & Season’s Holiday!
No matter how much I plan and pace and predict how attending an event will work, coping with the consequences never fails to surprise me with its intensity. I do my best to mitigate pain difficulties during an event and leave time for recovery but I’m not psychic so I cannot account for everything that might happen and how it will make me feel.
Myself (far right) with my girlfriends last night taking timeout in the beer garden to enjoy some sangria💖💖💖
Last night I had the pleasure of attending Folk Fest with a couple of girlfriends. They were kind enough to pick me up and take me in the early evening, thus decreasing the total time I’d be there but still allowing plenty of time for us to have some fun and see the entertainers I most wanted to see.
Lately I’ve been saying, “fuck it, I’m going,” then figuring out ways of doing some of the things I most enjoy rather than being permanently sidelined. I consider myself incredibly lucky to have friends and family willing to take my special needs into account and help me to make the most of what I am able to do.
I think my new fuck it attitude has enabled me to enjoy life a little more but it has also had a direct effect on the time I spend out of commission during the time following. No matter how much care I take during an event I always know there will be time spent in recovery mode for several days after.
What does recovery look like for me? It’s not particularly pleasant;
- Pain levels highly elevated
- Decreased mobility
- Extra time spent sleeping and feeling overly tired
- Inability to do much beyond resting for several days. Recovery time needed depends a myriad of factors and I often find it difficult to predict
- Feeling overly emotional, tearful, depressed, and angry
- Difficulties concentrating
- Difficulties completing simple household tasks
- Increased need for pain medication
In spite of my desire to try to take part in things I enjoy more I can’t help but wonder if it’s worth the inevitable painful recovery time. In spite of this trepidation I plan to continue to say, “fuck it, I’m going,” whenever I can reasonably do so. The joy returning to my life is, I think, worth it and will hopefully make me stronger in the long run.
If you suffer from a chronic condition do you have a, “fuck it, I’m going,” policy or something similar and if so what do you do to mitigate recovery time and still enjoy taking the chance to do what you love on occasion? I would love to hear your ideas and stories.